Updates

April 20, 2020April 21, 2020
Publisher’s Note: New Survey Aimed at PH Patients Not Currently on Treatment

Based on recently conducted surveys, we know there is a subset of patients with pulmonary hypertension who are currently not on therapies approved by ... Read more
May 25, 2020May 25, 2020
Eurordis Urges Expansion of Newborn Screening Initiatives Across Europe

European authorities must step up efforts to screen babies for a multitude of genetic disorders, a panel of experts suggested during a May 14-15 ... Read more
May 22, 2020May 22, 2020
Nicotine Inhaled Often, as with E-cigarette Use, Linked to PH in Mice

Chronic inhalation of nicotine, the addictive component of all tobacco products, is enough to trigger changes in pulmonary arteries and in the heart’s right ... Read more
May 20, 2020May 20, 2020
Study Reveals How Sotatercept Works in PAH Rat Model, Supporting Its Potential for Patients

Newly published research has detailed the underlying biochemical process behind Acceleron Pharma’s investigational therapy sotatercept (ACE-011) for the potential treatment of people with pulmonary ... Read more
May 18, 2020May 14, 2020
Finding Love with a Chronic Illness

I’ve written in previous columns about the difficulties I’ve experienced while navigating romantic relationships with a chronic illness. This week, I wanted to write ... Read more
May 18, 2020May 15, 2020
Caring for the Caregiver

I have heard it said that self-care is not selfish. While I may agree with that consciously, my subconscious still has not quite embraced ... Read more

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March 2, 2018September 11, 2019

Being Patient Is Difficult when You’re a Patient

Columns, Recharged and Rewired - a Column by Brittany Foster

“You just have to be patient.” I can’t begin to count how many times I’ve heard this throughout my years of managing chronic illness. Although I have 26 years of experience with doctor’s appointments, testing, surgeries, medications, and the ... Read more

Publisher’s Note: New Survey Aimed at PH Patients Not Currently on Treatment

Eurordis Urges Expansion of Newborn Screening Initiatives Across Europe

Nicotine Inhaled Often, as with E-cigarette Use, Linked to PH in Mice

Study Reveals How Sotatercept Works in PAH Rat Model, Supporting Its Potential for Patients

Finding Love with a Chronic Illness

Caring for the Caregiver

Publisher’s Note: New Survey Aimed at PH Patients Not Currently on Treatment

Opening Up About My Struggles with Mental Health

Unity and EU-wide Efforts Focus of Online Rare Disease Meeting

I Need to Be Understood, Not Fixed

Obesity Linked to Lower Risk of Mortality in PH Patients, Study Finds

INOmax Use Aids Premature Babies with PH, Phase 4 Study Shows

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Publisher’s Note: New Survey Aimed at PH Patients Not Currently on Treatment

Balancing Positivity and Realism When Facing Chronic Illness

At-home System of Inhaled Nitric Oxide Treats PAH Patient Infected With COVID-19

I’m Celebrating a Year with You

Celebrating World PH Day and National Nurses Week

Sleepless Nights Are Stressing Me Out

Publisher’s Note: New Survey Aimed at PH Patients Not Currently on Treatment

Opsumit Can Ease Strain on Right Ventricle and PAH Severity, Trial Shows

PAH Trials Pausing Enrollment for COVID-19, United Therapeutic Says

Dealing with the Fear of Losing Independence

Publisher’s Note: New Survey Aimed at PH Patients Not Currently on Treatment

The Power of Words

Expressing My Fears Gives Me a Sense of Freedom

Publisher’s Note: New Survey Aimed at PH Patients Not Currently on Treatment

NORD Webinar Outlines COVID-19 Response on Financial, Policy Fronts

Pulmonary Hypertension Association to Hold Virtual Fundraiser on World PH Day

Surge in Telemedicine One ‘Good’ Outcome from COVID-19 Crisis, Doctors Say

Coping with Skipped Doctors’ Appointments During COVID-19 Lockdown

Industry leaders seek to advance innovative resources for rare and orphan disease communities amid COVID-19 outbreak

PH Has Changed Me in Profound Ways

The Mental Wellness Challenges of an Introvert

Benefits of Orenitram for PAH Patients Detailed in New Data

FDA Grants Orphan Drug Designation to Cereno Scientific’s Lead Candidate CS1 for PAH

NORD Opens COVID-19 Financial Aid Program for Rare Disease Community

Novel IPAH Mutations Found in Chinese Patients, Study Reports

I’m Changing How I Respond to Family Concerns About My Health

The Real Red Band Society

I’m Starting to Lose It with Social Distancing

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