Updates

October 20, 2020October 20, 2020
How Knowing Your PAH Risk Status Helps Put You and Your Doctor in Control
October 23, 2020October 23, 2020
Tyvaso Improves Lung Function in PH-ILD Patients, New Trial Data Show

Treatment with Tyvaso (inhaled treprostinil) can improve lung function in people with pulmonary hypertension associated with interstitial lung disease (PH-ILD), new data from a ... Read more
October 22, 2020October 22, 2020
Telehealth ‘Helpful’ Alternative to In-person Care, Rare Disease Patients Say

A majority of rare disease patients using telehealth during the COVID-19 pandemic thought the experience positive, and many would like the option of continuing its ... Read more
October 21, 2020October 19, 2020
As the Holidays Approach, It’s OK to Say No

After dealing with a pandemic for more than eight months, many in my area are growing restless. I can’t say I haven’t felt the ... Read more
October 21, 2020October 21, 2020
Balloon Angioplasty May Help Considerably in Treating CTEPH, Study Finds

The combination of pulmonary endarterectomy (PEA), a surgery to remove blood clots in the lungs, and balloon pulmonary angioplasty (BPA), the use of balloons ... Read more

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March 2, 2018September 11, 2019

Being Patient Is Difficult when You’re a Patient

Columns, Recharged and Rewired - a Column by Brittany Foster

“You just have to be patient.” I can’t begin to count how many times I’ve heard this throughout my years of managing chronic illness. Although I have 26 years of experience with doctor’s appointments, testing, surgeries, medications, and the ... Read more

Updates

How Knowing Your PAH Risk Status Helps Put You and Your Doctor in Control

Tyvaso Improves Lung Function in PH-ILD Patients, New Trial Data Show

Telehealth ‘Helpful’ Alternative to In-person Care, Rare Disease Patients Say

Balloon Angioplasty May Help Considerably in Treating CTEPH, Study Finds

I’m Seeking Professional Help to Cope With My Diagnosis

Tenax Acquires Rights to Oral Levosimendan, Plans Phase 3 Trial in Type 2 PH

Cassidy Huff Doesn’t Let Expectations Get in the Way of Finding Joy

Surface Protein CD248 May Be Potential Therapeutic Target for PAH, Preclinical Study Suggests

FDA Approves Clinical Trial of TIVUS System in PAH

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Practicing Self-care While Working From Home

Newly Identified DNA Variants Affect BMPR2 Gene Activity in Familial PAH

Take Care of the Aging Caregiver

IGFBP2 Protein May Be New Biomarker for PAH, Study Suggests

Learning to Live Fully Despite Recurring Trauma

Case Study Links Long-term Use of Antipsychotics to CTEPH

Let’s Take a Ride: Pushing My Boundaries

Making the Difficult Decision Not to Attend a Funeral

FDA Asked to Approve Intravenous Uptravi as Option When Tablets Won’t Do

Letairis Shows Efficacy and Safety in Children With PAH in Phase 2b Trial

PH Often Prevents Me From Getting Quality Sleep

Increased Dosing of Diazoxide May Induce Pulmonary Hypertension, Case Report Suggests

Maintaining a Healthy Relationship Between Doctor and Patient

Rare Variants of ABCC8 Gene Identified in Spanish PAH Patients

I’m Learning to Replace Comparisons With Reflection

New Virtual Tool May Allow Fast, Accurate PH Diagnosis During COVID-19, Study Says

Moderna, Chiesi Will Collaborate on New RNA-based Therapies for PAH

Creating Your Own Recipe for Lemonade

Study Results Support Opsumit-Adcirca Combo for Newly Diagnosed PAH

10 Tips for Dealing With Chronic Illness

Challenges to Treating PH in Developing Countries Come With Opportunities, Review Asserts

Creating Space Between Peace and Anxiety

Being Patient Is Difficult when You’re a Patient

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Tyvaso Improves Lung Function in PH-ILD Patients, New Trial Data Show

Telehealth ‘Helpful’ Alternative to In-person Care, Rare Disease Patients Say

As the Holidays Approach, It’s OK to Say No

Balloon Angioplasty May Help Considerably in Treating CTEPH, Study Finds

I’m Seeking Professional Help to Cope With My Diagnosis

Tenax Acquires Rights to Oral Levosimendan, Plans Phase 3 Trial in Type 2 PH

Cassidy Huff Doesn’t Let Expectations Get in the Way of Finding Joy

Surface Protein CD248 May Be Potential Therapeutic Target for PAH, Preclinical Study Suggests

FDA Approves Clinical Trial of TIVUS System in PAH

Subscribe to our mailing list

Practicing Self-care While Working From Home

Newly Identified DNA Variants Affect BMPR2 Gene Activity in Familial PAH

Take Care of the Aging Caregiver

IGFBP2 Protein May Be New Biomarker for PAH, Study Suggests

Learning to Live Fully Despite Recurring Trauma

Case Study Links Long-term Use of Antipsychotics to CTEPH

Let’s Take a Ride: Pushing My Boundaries

Making the Difficult Decision Not to Attend a Funeral

FDA Asked to Approve Intravenous Uptravi as Option When Tablets Won’t Do

Letairis Shows Efficacy and Safety in Children With PAH in Phase 2b Trial

PH Often Prevents Me From Getting Quality Sleep

Increased Dosing of Diazoxide May Induce Pulmonary Hypertension, Case Report Suggests

Maintaining a Healthy Relationship Between Doctor and Patient

Rare Variants of ABCC8 Gene Identified in Spanish PAH Patients

I’m Learning to Replace Comparisons With Reflection

New Virtual Tool May Allow Fast, Accurate PH Diagnosis During COVID-19, Study Says

Overcoming My Fear of Being Judged

Moderna, Chiesi Will Collaborate on New RNA-based Therapies for PAH

Creating Your Own Recipe for Lemonade

Study Results Support Opsumit-Adcirca Combo for Newly Diagnosed PAH

10 Tips for Dealing With Chronic Illness

Challenges to Treating PH in Developing Countries Come With Opportunities, Review Asserts

Finding a Balance With the Online Chronic Illness Community

Creating Space Between Peace and Anxiety

Pin It on Pinterest