Tyvaso Improves Lung Function in PH-ILD Patients, New Trial Data ShowTreatment with Tyvaso (inhaled treprostinil) can improve lung function in people with pulmonary hypertension associated with interstitial lung disease (PH-ILD), new data from a ... Read more
Telehealth ‘Helpful’ Alternative to In-person Care, Rare Disease Patients SayA majority of rare disease patients using telehealth during the COVID-19 pandemic thought the experience positive, and many would like the option of continuing its ... Read more
Balloon Angioplasty May Help Considerably in Treating CTEPH, Study FindsThe combination of pulmonary endarterectomy (PEA), a surgery to remove blood clots in the lungs, and balloon pulmonary angioplasty (BPA), the use of balloons ... Read more
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“You just have to be patient.” I can’t begin to count how many times I’ve heard this throughout my years of managing chronic illness. Although I have 26 years of experience with doctor’s appointments, testing, surgeries, medications, and the ... Read more