Pulmonary Fibrosis Patient Spearheads Lung Transplant Foundation to Help Others
At 3 a.m. on July 6, 2003, Miami resident Jeffrey Goldstein got a call that would change his life. Doctors at the Duke University ... Read more
Updates
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PHA Adds Four Newly Accredited Centers of Comprehensive Care to its Network
After demonstrating an ability to deliver top-shelf care to patients with pulmonary hypertension (PH), four sites have been added to the Pulmonary Hypertension Association’s ... Read more -
Goal by Goal, I Climbed Out from the Pit of Despair
For almost an entire year, I felt completely lost. Some mornings, I lacked motivation to even get out of bed. I was trapped in ... Read more -
Global Rare Disease Group’s Focus: 1,000 New Therapies by 2027, Despite COVID-19
Even with the coronavirus pandemic ravaging Europe and much of the world, patient advocate Lucia Monaco, PhD, of Italy remains confident that the Paris-based ... Read more -
COVID-19 Patient with PH Treated with iNO Via Genosyl, VERO Biotech Announces
The first person with coronavirus disease 2019 (COVID-19) complicating pulmonary hypertension (PH) has received at-home treatment with inhaled nitric oxide (iNO), delivered through the ... Read more
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Staying Well (and Sane) During Coronavirus Self-isolation
I received a call a couple of days ago from my pulmonary hypertension (PH) ... -
First-line Combo Therapy Best for Patients with CTD-PAH, Analysis Shows
People with connective tissue disease-associated pulmonary arterial hypertension (CTD-PAH) — particularly those showing low ... -
When Two Heroes Met: Recalling My Son’s Encounter with a Baseball Legend
Do you need to hear a happy and uplifting human interest story? Here is ... -
Orenitram Tablets More Cost-effective Than Uptravi as PAH Treatment, Study Suggests
Treatment with Orenitram (oral treprostinil) is associated with lower healthcare-related costs than treatment with ... -
Staying Positive During a Global Pandemic
As I write this, I am watching the news. Shocker, right? As of the ... -
Major Bleed Risk Higher With Warfarin Than Xarelto in CTEPH Patients, Study Finds
Among people with chronic thromboembolic pulmonary hypertension (CTEPH), certain anticoagulants may reduce the risk ...
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Being Patient Is Difficult when You’re a Patient
Columns, Recharged and Rewired - a Column by Brittany Foster
“You just have to be patient.” I can’t begin to count how many times I’ve heard this throughout my years of managing chronic illness. Although I have 26 years of experience with doctor’s appointments, testing, surgeries, medications, and the ... Read more