Updates
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Fungus Used in Chinese Medicine Eased PAH Damage in Rat Model
Treatment with a fungus called Ophiocordyceps sinensis eased disease signs and improved survival in a rat model of pulmonary arterial hypertension (PAH), suggesting a potential ... Read more -
EveryLife Scholarship Fund Open Until May 7 for Adults With Rare Diseases in US
The EveryLife Foundation for Rare Diseases is accepting applications for a scholarship program that aims to help adults with a rare disease pursue personal goals through ... Read more -
Levosimendan Shows Benefits in 84% of Patients in Small PH-HFpEF Trial
Treatment with the investigational medication levosimendan was found to improve exercise tolerance, and some parameters related to heart function, in a small clinical trial of people ... Read more -
Our Son’s PH Journey Helped Me Appreciate My Husband More
I view marriage in a very spiritual and traditional way. It is one of the seven sacraments of my Catholic faith, and legally, it unites ... Read more -
Uptravi Can Help PAH Patients at Moderate, High Risk of Death, Registry Data Show
More than three-quarters (76%) of adults with pulmonary arterial hypertension (PAH) being treated with Uptravi (selexipag) either saw no increase or a decline in their ... Read more
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Being Patient Is Difficult when You’re a Patient
Columns, Recharged and Rewired - a Column by Brittany Foster
“You just have to be patient.” I can’t begin to count how many times I’ve heard this throughout my years of managing chronic illness. Although I have 26 years of experience with doctor’s appointments, testing, surgeries, medications, and the many ... Read more