Updates

October 21, 2019October 21, 2019
Higher Levels of sST2 Protein Linked to Poorer Outcomes in PH, Study Finds

Higher levels of a protein involved in certain immune responses, called soluble suppression of tumorigenicity-2 (sST2), are associated with more severe pulmonary hypertension (PH) and heart ... Read more
October 18, 2019October 17, 2019
Our Wedding Vows Took on New Meaning After My PH Diagnosis

On March 14, 1992, when my husband said, “In sickness and in health,” he had no idea just how important those five words would ... Read more
October 18, 2019October 17, 2019
My Dream Came True the Day I Met Carrie Underwood

“Sometimes that mountain you’ve been climbing is just a grain of sand.” That line is from one of my favorite Carrie Underwood songs, “So ... Read more
October 18, 2019October 18, 2019
Adcirca Treatment Improves Survival in Dogs with Pulmonary Hypertension, Study Shows

Adcirca (tadalafil) helped to improve survival in dogs with pulmonary hypertension (PH), a new study suggests. Knowing the underlying conditions associated with ... Read more
October 17, 2019October 17, 2019
Adcirca-Opsumit Combo Beneficial as First-line Treatment for Newly Diagnosed PAH Patients, Trial Shows

Treatment with Adcirca (tadalafil) plus Opsumit (macitentan) can provide functional benefits and lessen symptoms in newly diagnosed patients with pulmonary arterial ... Read more

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News, PH News

University College London Awarded £1M to Advance Heart Research Using Computational Biology
October 16, 2019October 16, 2019
To help those with heart and circulatory disorders live longer and better lives, the ...
News

How Diet Can Help Support Patients with Pulmonary Hypertension: A Nutritionist’s View
October 15, 2019
The mechanics of pulmonary hypertension (PH) create a cascade of events that affect the ...
Chronically Uncool – a Column by Ellie Bird, Columns

Crafting New Dreams for My Life
October 14, 2019October 10, 2019
This is probably the hardest column I’ve written to date. It’s about how I ...
Columns, Life As A Caregiver - a Column By Colleen Steele

Make-A-Wish Foundation Provides Joy to Children, Families, and Volunteers
October 14, 2019October 10, 2019
In last week’s column, I shared how the Make-A-Wish Foundation granted my son Cullen’s prodigious ...
News, PAH News

Respira Reacquires Full Rights Over RT234 for As-Needed PAH Symptom Relief
October 14, 2019October 14, 2019
Respira Therapeutics has regained full worldwide research, development, and licensing rights over its inhaled ...
Columns, Recharged and Rewired - a Column by Brittany Foster

My Life Is About Waiting and Being Present in the Moment
October 11, 2019October 9, 2019
Living in the moment feels like an impossible feat while managing a chronic illness. ...

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My Free Advice to PH Newcomers
October 11, 2019October 9, 2019
Nowadays, we pay for just about anything imaginable. But today is your lucky day! ...
PH Doubles Risk of Death in People with Tricuspid Regurgitation, Study Reports
October 11, 2019October 11, 2019
Pulmonary hypertension contributes to markedly poorer outcomes and doubles a risk of death in ...
HMGB1 Protein May Be Biomarker of Persistent Pulmonary Hypertension of the Newborn, Study Reports
October 10, 2019October 10, 2019
Low Blood Levels of Secretin Hormone May Trigger PH, Mouse Study Suggests
October 9, 2019October 9, 2019
Adjusting My Diet for Health Benefits While Avoiding a Guilty Mindset
October 7, 2019October 7, 2019
My Son Dreamed Big, and Make-A-Wish Made it Happen
October 7, 2019October 4, 2019

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Positive Data Supports Advancing Rodatristat Ethyl to Phase 2 Trials in PAH Patients, Altavant Says
October 7, 2019October 7, 2019
Oral treatment with rodatristat ethyl is safe and well-tolerated, according to results from two ...
Finding Joy in a Walk to the Ocean While Visiting My Favorite City
October 4, 2019October 2, 2019
The Girl with the Turtle Tattoo
October 4, 2019October 2, 2019
Halting Slug Protein May Lessen Risk of PH in Fibrotic Lungs, Study Suggests
October 4, 2019October 4, 2019

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Blocking EYA3 Enzyme May Prevent Vascular Remodeling Seen in PAH, Study Suggests
October 3, 2019October 3, 2019
An enzyme involved in DNA damage processes, called EYA3, contributes to structural changes in ...
PHA Recognizes Loma Linda University Health as Accredited PH Center, 1st in California
October 2, 2019October 2, 2019
FAQs About Pulmonary Hypertension
October 2, 2019October 2, 2019

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Chronically Uncool – a Column by Ellie Bird, Columns

Rest and PH: When My Body Talks, I Listen
September 30, 2019October 2, 2019
When a person is diagnosed with a serious condition like pulmonary hypertension (PH), they ...
Columns, Life As A Caregiver - a Column By Colleen Steele

How to Keep PH From Ruining Halloween Fun
September 30, 2019September 26, 2019
My inner child awakens every fall. As the foliage starts to change into its ...
News, PAH News

RNF213 Gene Variant a Risk Factor for Poor Outcomes, Treatment Resistance in PAH, Study Reports
September 30, 2019September 30, 2019
Patients with pulmonary arterial hypertension (PAH) who carry a specific mutation in the RNF213 ...
Columns, Worth the PHight - a Column by Jen Cueva

Educating TSA Agents About PH and Disability Issues
September 27, 2019September 26, 2019
Traveling by plane can be stressful for anyone. Flying with pulmonary hypertension (PH) and ...
Columns, Recharged and Rewired - a Column by Brittany Foster

Physical Exhaustion Leaves Me with Unspoken Fears
September 27, 2019September 25, 2019
“Just go take a nap.” That’s the response I often receive when I tell ...
News, PAH News

PAH Incidence Rare in France But Carries High Economic Burden, Study Shows
September 27, 2019September 27, 2019
The incidence of pulmonary arterial hypertension (PAH) is rare in France, but it carries ...
News

NORD 2019 Rare Disease Summit Set for Oct. 21-22 in Washington, DC
September 27, 2019September 27, 2019
Next month’s annual conference of the National Organization for Rare Disorders (NORD) in Washington, ...
News

Significant Racial Variability Exists Among Subtypes and Survival in Children with PH, Study Says
September 26, 2019September 26, 2019
Analysis of a North American pediatric registry revealed significant variability of pulmonary hypertension (PH) ...
News

Arterial Shunt for PAH Receives FDA’s Breakthrough Device Designation
September 26, 2019September 26, 2019
V-Wave’s new interatrial shunt — a medical device designed to reduce arterial heart pressure ...
News, PAH News

Translate Bio Focused on Developing New Candidates to Treat PAH, Other Pulmonary Diseases
September 25, 2019September 25, 2019
Translate Bio is focusing its efforts on the development of new therapies targeting pulmonary ...
Chronically Uncool – a Column by Ellie Bird, Columns

Going After Your Dream Job When You Have a Chronic Illness
September 23, 2019September 25, 2019
Holding down a job when you have a chronic illness can be really tricky. ...
Columns, Life As A Caregiver - a Column By Colleen Steele

Tips on Organizing PH Supplies at Home
September 23, 2019September 25, 2019
Change is inevitable when you or a loved one is diagnosed with pulmonary hypertension ...
News, PAH News

Altavant Sciences Details Its ‘Patient-centric’ Approach to PAH Clinical Trials
September 23, 2019September 25, 2019
Altavant Sciences presented its patient-centered approach to drug development, which informed the design of ...
News

Owlstone Launches New Generation of Tools to Support ID of Disease Biomarkers on Person’s Breath
September 20, 2019September 20, 2019
Owlstone Medical announced that it has introduced a new ReCIVA Breath Sampler and CASPER Portable ...
Columns, Recharged and Rewired - a Column by Brittany Foster

When I Say I Can’t Get Pregnant, Hearing ‘You Never Know’ Hurts
September 20, 2019September 17, 2019
“Is there any chance you are pregnant?” Unfortunately, I have had to answer this ...

March 2, 2018September 11, 2019

Being Patient Is Difficult when You’re a Patient

Columns, Recharged and Rewired - a Column by Brittany Foster

“You just have to be patient.” I can’t begin to count how many times I’ve heard this throughout my years of managing chronic illness. Although I have 26 years of experience with doctor’s appointments, testing, surgeries, medications, and the ... Read more

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