Chronic Illness Makes My World Smaller
Christie and I were walking through the Haight-Ashbury neighborhood in San Francisco when I heard someone call my name. Dhaya Lakshminarayanan waved me over. ... Read more
Updates
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How I Learned to Keep the Faith After My Son’s Diagnosis
Almost 10 years ago, my husband and I were sitting in a pediatric cardiologist’s office with our son awaiting the results of an ... Read more -
IL-17 Protein Seen to Promote PH Linked to Lung Diseases Like COPD in Study
Interleukin-17 (IL-17), a proinflammatory protein, appears to play important roles in the development of hypoxic pulmonary hypertension (HPH), a common and potentially life-threatening condition ... Read more -
To My Support System: Thank You for Never Giving Up on Me
Chronic illness often leaves me feeling frustrated with my physical and mental health. When I am feeling overwhelmed by my body’s symptoms or experiencing ... Read more -
Here Are My Tips for Managing Your Summer Road Trip
Summer is here, and perhaps a road trip is in your plans for the season. I’ve always looked forward to this time of year. ... Read more
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Small RNA Molecule May Slow Pulmonary Vascular Remodeling to Treat PAH, Study Suggests
A tiny RNA molecule known as microRNA-410 (miR-410) was seen to slow the proliferation ... -
European Initiative Targets Diagnosis, Treatment of Rare Diseases
A new international consortium based in Paris, and funded largely by the 28-member European ... -
Long-term Orenitram Use Can Help PAH Patients Walk Longer Distances, Extension Trial Finds
Long-term use of Orenitram led to moderate but durable, and dose dependent, improvements in exercise ... -
Raising Levels of Nur77 May Help Halt Progression of PH, Study Suggests
Increasing levels of the receptor Nur77 in cells lining the blood vessels of patients ... -
The Therapeutic Benefits of 40 Years of Journal Writing
As a little girl, I developed a huge crush on the character John Boy ... -
Left Heart Dysfunction Plays Key Role in Severe PAH, Study Suggests
Left heart dysfunction may play an important role in severe pulmonary arterial hypertension (PAH), ...
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Being Patient Is Difficult when You’re a Patient
Columns, Recharged and Rewired - a Column by Brittany Foster
“You just have to be patient.” I can’t begin to count how many times I’ve heard this throughout my years of managing chronic illness. Although I have 26 years of experience with doctor’s appointments, testing, surgeries, medications, and the ... Read more