30 Days of PH: Beating PH And Cancer
View this post on Instagram Day 15 of 30 Days of PH⠀ Topic: Beating PH and Cancer⠀ ⠀ This is Cathy’s story @ebayqueen55⠀ ⠀ ... Read more
Updates
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Rare Disease Film Festival Highlights Patient and Researcher Unity
Rare disease-themed videos glowed on a large screen before an audience of people in wheelchairs, with crutches, and bearing oxygen tanks this Nov. ... Read more -
While Difficult to Share, Here Is My PH Story
November is Pulmonary Hypertension Awareness Month, a good time to share a little more about my journey with y’all. My hope is that ... Read more -
My Recent Surgery Triggered My PTSD
Last week, I scrolled through Pinterest on my phone as I was wheeled into the endoscopy suite for a J-tube placement. I was doing everything I could ... Read more -
30 Days of PH : Military Wife And Mom
View this post on Instagram Day 14 of 30 Days of PH ⠀ Topic: Military wife and mom ⠀ ⠀ This is Dawn's story ... Read more
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INOpulse Improves Physical Activity in PH-PF Patients, Early Trial Results Show
The vasodilator INOpulse increased physical activity and helped maintain higher levels of exercise in ... -
30 Days of PH: Alternative Therapies
View this post on Instagram Day 12 of 30 Days of PH⠀ Topic: Alternative ... -
Opening Up About My Diagnosis
One of the hardest parts for me about having a serious chronic illness is ... -
30 Days of PH: Growing Up With A Mom With PH
View this post on Instagram Day 11 of 30 Days of PH⠀ Topic: Growing ... -
Infants with PPHN More Likely to be Readmitted to Hospital Within First Year, Study Reports
Infants with mild or severe forms of persistent pulmonary hypertension of the newborn, who ...
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Being Patient Is Difficult when You’re a Patient
Columns, Recharged and Rewired - a Column by Brittany Foster
“You just have to be patient.” I can’t begin to count how many times I’ve heard this throughout my years of managing chronic illness. Although I have 26 years of experience with doctor’s appointments, testing, surgeries, medications, and the ... Read more