Updates

February 20, 2019February 20, 2019
Balloon Pulmonary Angioplasty Can Shorten CTEPH Patients’ Hospital Stays, Study Reports

Greater experience in balloon pulmonary angioplasty (BPA) enables shorter hospital stays for patients with chronic thromboembolic pulmonary hypertension (CTEPH), reduces use of intensive care, and ... Read more
February 18, 2019February 18, 2019
Approved Lung Cancer Therapy Dacomitinib Shows Promise in Treating PAH, Animal Study Finds

Dacomitinib, a medicine recently approved by the U.S. Food and Drug Administration for the treatment of certain forms of lung cancer, showed promising ... Read more
February 15, 2019February 14, 2019
Have You Joined the Pulmonary Hypertension News Forums Yet?

My support systems provide me with courage, sympathy, and compassion and help me to persevere in difficult moments. A large part of my support ... Read more
February 15, 2019February 15, 2019
Pulmonary Artery Denervation Can Improve CpcPH Patients’ Outcome, Trial Shows

Invasive pulmonary artery denervation is safe and can improve the outcome of patients with combined pre- and post-capillary pulmonary hypertension associated with left heart ... Read more
February 14, 2019February 20, 2019
Heart-lung Transplant Inspires Art, Valentines

The night before my heart-lung transplant, I was in my high school art studio working on an oil painting. I had started painting to ... Read more

News, PAH News

Ventavis Improves Right Ventricle Function in Certain PAH Patients, Study Shows
February 14, 2019February 20, 2019
Acute treatment with Ventavis (iloprost) improves the heart’s right ventricular (RV) function in patients ...
News

CHEST Releases Updated Guidelines for PAH Treatment
February 13, 2019February 18, 2019
An updated guideline with new recommendations for the treatment of patients with pulmonary arterial ...
News

Patients, Family and Friends to Take Part in Variety of Rare Disease Day Events Worldwide
February 12, 2019February 12, 2019
Scores of events are afoot worldwide to mark Feb. 28, Rare Disease Day 2019. The activities ...
News

Wireless Monitoring May Help Transition of Therapy in PAH, Study Suggests
February 11, 2019February 11, 2019
An implantable wireless system may help guide the transition from medication administered intravenously — Remodulin ...
Columns, Recharged and Rewired - a Column by Brittany Foster

Expressing Gratitude Instead of Apologizing
February 8, 2019February 14, 2019
“I’m sorry you have to take these days out of work.” “I’m sorry for ...
News, PAH News

Generic Version of Adcirca to be Launched in US Under Brand Name ALYQ for PAH
February 8, 2019February 14, 2019
Teva Pharmaceutical Industries announced the launch of a generic version of Adcirca (tadalafil) under the ...

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Toronto Partnership to Create Fast Diagnostic Tools to Assess Donated Lungs for Transplant
February 7, 2019February 13, 2019
Plans to create and license diagnostic tools to help transplant surgeons rapidly and accurately ...
Gratitude for an Unfair Life
February 6, 2019February 12, 2019
I am particularly sensitive to feeling left out of activities with friends. This started ...
Group Publishes New Guidelines on Home Oxygen Therapy for Kids with PH
February 6, 2019February 12, 2019
Early Results on Rodatristat Ethyl Support Launch of Phase 2 Trial in PAH Patients
February 4, 2019February 7, 2019
Malnutrition’s Impact on My Physical and Mental Health
February 1, 2019February 6, 2019
Neurological Problems Possible in Premature Babies with BPD-related PH, Study Finds
February 1, 2019February 8, 2019

TAF Offering Copay Assistance for PH Treatments to Eligible Patients Across US
January 31, 2019February 5, 2019
Eligible pulmonary hypertension patients could gain access to financial assistance in paying for PH therapies approved ...
United Therapeutics Gains Global Rights to Potential PAH Therapy Ralinepag
January 30, 2019January 31, 2019
AIT’s Portable NO Generator Will Be Made Available in U.S., China Next Year
January 28, 2019February 1, 2019
High Cardiac Troponin Levels Linked to Poor Outcomes in PH, Study Shows
January 25, 2019January 29, 2019

Gender and Right Ventricular Function Predict Prognosis in Group 3 PH, Study Shows
January 24, 2019January 31, 2019
Male patients with group 3 pulmonary hypertension (PH) have worse right ventricular (RV) function ...
PAH Prevalence in South Korea Comparable with Other Countries, Study Shows
January 23, 2019February 4, 2019
Patient’s Lawsuit Put Emphasis on ‘Urgency’ in Deciding Organ Transplants in US
January 22, 2019January 24, 2019

CTEPH News, News

Actelion Needs Further Studies on Opsumit Treatment for Inoperable CTEPH, US FDA Says
January 21, 2019January 25, 2019
Actelion Pharmaceuticals has received a complete response letter from the U.S. Food and Drug Administration ...
News, PH News

PH Linked to Bronchopulmonary Dysplasia Resolves Over Time in Many Preemies, Study Reports
January 18, 2019January 28, 2019
Pulmonary hypertension (PH) associated with bronchopulmonary dysplasia (BPD) resolves over time in nearly two-thirds ...
News

Dutch Hospital Uses Non-invasive Tool to Diagnose PH in Sarcoidosis Patients Early
January 17, 2019January 23, 2019
Doctors in the Netherlands are using the VMS Heart Analysis System, developed by Ventripoint ...
News, PAH News

Tracleer May Be More Cost-effective Than Some Other PAH Therapies, Review Study Reports
January 16, 2019January 23, 2019
Treatment of pulmonary arterial hypertension (PAH) with Tracleer (bosentan) may be more cost-effective than ...
News, PAH News

β-thalassemia Patients at Risk for PAH Show Improvements on Tracleer, Case Report Says
January 14, 2019January 17, 2019
Tracleer (bosentan) treatment improves mean pulmonary arterial pressure (mPAP) in β-thalassemia patients with potential ...
CTEPH News, News, PAH News

Long-term Adempas Treatment May Reverse Right Heart Deficits in Patients with PAH, CTEPH, Study Finds
January 11, 2019January 14, 2019
Long-term treatment with Adempas (riociguat) can reduce right heart size and improve the heart’s ...
News

INOpulse Device Improves Physical Activity in PH-ILD Patients, Phase 2b Trial Shows
January 10, 2019January 21, 2019
Treatment with INOpulse for eight weeks is safe and provides clinically meaningful improvements in ...
News, PH News

Team PHenomenal Hope Accepting Applications for Research Grants
January 9, 2019January 9, 2019
With the goal of enhancing the lives of pulmonary hypertension (PH) patients, including through ...
News, PAH News

Repeated Measurements of Biomarkers May Improve Prognostic Accuracy in PAH-CHD Patients, Study Finds
January 7, 2019January 7, 2019
Repeated measurements of different biomarkers over time offer a better risk prediction than single ...
News, PH News

Chinese PH Patients Form Beijing-based Advocacy Group
January 4, 2019January 21, 2019
Pulmonary hypertension (PH) patients in China, the world’s most populous nation, finally have their ...
CTEPH News, News

Obstructive Sleep Apnea Affects Cardiac Function of CTEPH Patients
January 3, 2019January 11, 2019
Worse measures of blood flow, arterial oxygenation, and cardiac function may underlie the poor ...
Columns, Life After PH – A Column By Kathleen Sheffer

2018: My Year in Review
January 2, 2019December 20, 2018
2018 was triumphant. I accomplished several of my long-term goals. I had zero organ ...
News, PAH News, PH News

Top 10 Pulmonary Hypertension Stories of 2018
January 2, 2019January 15, 2019
Throughout the past year, Pulmonary Hypertension News has brought you information about important discoveries, ...
Columns, Recharged and Rewired - a Column by Brittany Foster

Focusing on Happiness During the Holidays
December 21, 2018December 19, 2018
When I was younger, the holiday season was all about happiness and excitement. But ...
News

Rising Healthcare Costs Strain EU Budgets Even as New Therapies Flourish
December 20, 2018January 10, 2019
Cash-strapped governments across the 28-member European Union are struggling to control runaway healthcare expenditures ...

March 2, 2018March 1, 2018

Being Patient Is Difficult when You’re a Patient

Columns, Recharged and Rewired - a Column by Brittany Foster

“You just have to be patient.” I can’t begin to count how many times I’ve heard this throughout my years of managing chronic illness. Although I have 26 years of experience with doctor’s appointments, testing, surgeries, medications, and the ... Read more

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