Exercise and PH: Becoming Active Again After Diagnosis
After I was diagnosed with pulmonary hypertension (PH), I was so scared of doing any further damage to my heart that I stopped exercising ... Read more
Updates
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My Son’s Friendship Was Not Defined by PH
My son Cullen was excited to tell me he’d made a friend on his first day of kindergarten. Fifteen years later, he and Keenan ... Read more -
Acceleron’s Sotatercept Receives FDA’s Orphan Drug Status for PAH
The U.S. Food and Drug Administration (FDA) has granted orphan drug status to sotatercept for the treatment of pulmonary arterial hypertension (PAH), according to ... Read more -
Weight Management Is an Ongoing Challenge While Living with PH
For the first 18 years of my life, I rarely thought about my weight. I was active, enjoyed playing sports, and had a muscular, ... Read more -
Natural Disaster Preparedness Tips for PH Patients
The number of devastating natural disasters has increased significantly in the past several years. These billion-dollar disasters strike some states repeatedly. Therefore, residents in ... Read more
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FDA Agrees to Review Trevyent, with PumpPatch System, as PAH Treatment
The U.S. Food and Drug Administration (FDA) has agreed to review a request to approve ... -
Israeli Group Pushes for Better Awareness and Treatment of Pulmonary Hypertension
For two-and-a-half painful years, Jerome Maharaj, 42, had no idea what was wrong with ... -
FDA Grants Breakthrough Device Status to SoniVie’s TIVUS System for PAH
The U.S. Food and Drug Administration (FDA) has granted the designation of breakthrough device ... -
I’m Breathing Easier After Receiving My PH Diagnosis
Welcome to Ellie Bird’s “Chronically Uncool,” a new Pulmonary Hypertension News column. When I was ... -
The Therapeutic Benefits of Owning a Pet
My son was 8 years old when he was diagnosed with pulmonary hypertension (PH). ... -
Two Non-Invasive Tests Predict PAH Prognosis in Patients with Congenital Heart Disease, Study Reveals
Only two non-invasive diagnostic tests are required to best predict the risk of adverse ...
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Being Patient Is Difficult when You’re a Patient
Columns, Recharged and Rewired - a Column by Brittany Foster
“You just have to be patient.” I can’t begin to count how many times I’ve heard this throughout my years of managing chronic illness. Although I have 26 years of experience with doctor’s appointments, testing, surgeries, medications, and the ... Read more