Celebrating My 15-year PH Diagnosis Anniversary
Today is Valentine’s Day, y’all. I know that some of you are eating fancy chocolates and sipping wine, all the while blowing kisses to ... Read more
Updates
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I Will Not Be Silenced in an Emergency Room
“Can you keep it down? There are other sick people here.” These were the words spoken to me in an emergency room last weekend. ... Read more -
Buildup of Oxidized LDLs in Lungs, Plasma Promote PH Progression, Study Shows
The buildup in the lungs and plasma of oxidized low-density lipoproteins, or LDLs — one of the major vehicles for the transport of cholesterol ... Read more -
Aria CV’s PH System Designated as Breakthrough Device by FDA
Aria CV‘s medical device for treating pulmonary hypertension (PH) has been given a Breakthrough Device designation by the United States Food and Drug ... Read more -
FDA Efforts to Bring Patients into Treatment Decisions Focus of NORD Webinar
The U.S. Food and Drug Administration (FDA), a vast government bureaucracy, employs about 17,500 people and had a budget of $5.7 billion in 2019. ... Read more
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Switching to Inhaled Treprostinil Combo Safe, Effective in Stable PAH Patients, Study Suggests
Switching from injectable treprostinil or epoprostenol to a combination therapy including inhaled treprostinil appears to ... -
Words of Support for Those Transitioning from Hope to Grief
Pulmonary hypertension (PH) is an incurable, life-threatening disease. This reality is a gaping wound ... -
PhaseBio Reports Positive Effects of PB1046 Therapy in PAH Patient in Case Study
The biopharmaceutical PhaseBio announced positive results from a case study involving a patient with ... -
My Smile Is Hiding Chronic Pain
If you saw me you would probably notice my bright blue eyes (thanks, Pawpaw) ... -
Demi Lovato Sang About My Struggles
A couple of weeks ago, I listened with tears in my eyes as Demi ... -
With Post-Brexit Move to Amsterdam Complete, EMA Renews Rare Disease Focus
The gleaming new Dutch headquarters of the European Medicines Agency (EMA), fronting Domenico Scarlattilaan ...
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Being Patient Is Difficult when You’re a Patient
Columns, Recharged and Rewired - a Column by Brittany Foster
“You just have to be patient.” I can’t begin to count how many times I’ve heard this throughout my years of managing chronic illness. Although I have 26 years of experience with doctor’s appointments, testing, surgeries, medications, and the ... Read more