This ‘Advocacy August,’ Let’s Educate Our Elected Officials About PH
“Advocacy August” is here. Because pulmonary hypertension (PH) is a rare disease and has no cure, it is necessary that we promote awareness among ... Read more
Updates
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How I Project My Physical and Mental Struggles
Last Sunday, I thudded up the stairs to my apartment, making as much noise as possible, unlocked the door forcefully, and slammed it behind ... Read more -
Targeting Feedback Signaling Mechanism Involved in Vascular Remodeling May Prevent PH, Study Finds
Disrupting the vascular remodeling feedback signaling loop mediated by CD146-HIF-1α can effectively prevent the development of pulmonary hypertension (PH) in mice, a study found. ... Read more -
People Born Prematurely More Likely to Develop PAH Later in Life, Study Says
People who were born prematurely, especially in recent years, are more likely to develop pulmonary arterial hypertension (PAH) later in life, a study says. ... Read more -
Uric Acid May Be Predictive Biomarker of PAH in Scleroderma Patients, Study Shows
Blood levels of uric acid may be a predictive biomarker of pulmonary arterial hypertension (PAH) in people with scleroderma, according ... Read more
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Cooking Is Great in Life with PH
A therapist once asked me what makes me happy, and I said “food” right ... -
Celebrating 5 Years of Living After Heart and Double-Lung Transplant
My son is celebrating a big transplant anniversary! Five years ago, on Aug. 7, ... -
Looking Back at My PH Journey and Finding Hope in the Hard Places
My schedule was hectic this week. I had several days of bloodwork and doctors’ ... -
The Importance of Assembling a Top-notch Medical Team
I don’t have control over a lot when it comes to my health. I ... -
Riociguat Not Recommended for Patients with PH Associated with IIP
Riociguat increases the risk of death and serious adverse events in people with pulmonary ...
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Being Patient Is Difficult when You’re a Patient
Columns, Recharged and Rewired - a Column by Brittany Foster
“You just have to be patient.” I can’t begin to count how many times I’ve heard this throughout my years of managing chronic illness. Although I have 26 years of experience with doctor’s appointments, testing, surgeries, medications, and the ... Read more