You and Your PAH: What You Can Do Sponsored Post
There’s no cure for pulmonary arterial hypertension (PAH), but what patients and their healthcare team do once they are diagnosed can affect their outcomes ... Read more
Updates
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Stepping Back From Work Does Not Mean I’m Letting My Illness ‘Win’
Ever since I was diagnosed with pulmonary hypertension (PH) in 2017, I have been determined to live as normal a life as possible. As ... Read more -
What Is Your Identity Outside of Patient or Caregiver?
My son Cullen was 8 when he was diagnosed with pulmonary hypertension (PH). During his pediatric PH years, I had the pleasure of meeting ... Read more -
Protein Could Help Monitor Heart Stress in Rare Form of PH
Soluble ST2 (sST2) protein could be an additional non-invasive biomarker for monitoring patients with chronic thromboembolic pulmonary hypertension (CTEPH) undergoing interventional treatment with balloon ... Read more -
NORD’s Caregiver Respite Program Continues Through Pandemic
Caring for a loved one with a rare disease, especially during these uncertain times, demands significant time, attention, patience, and dedication. To help meet ... Read more -
PF Foundation Patient Registry Opening to Those With Secondary PH
United Therapeutics is now among the leading sponsors of the Pulmonary Fibrosis Foundation (PFF) Registry, a research data resource for pulmonary fibrosis (PF) that is ... Read more
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Being Patient Is Difficult when You’re a Patient
Columns, Recharged and Rewired - a Column by Brittany Foster
“You just have to be patient.” I can’t begin to count how many times I’ve heard this throughout my years of managing chronic illness. Although I have 26 years of experience with doctor’s appointments, testing, surgeries, medications, and the ... Read more